News & Events
The International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) will be hosting their first virtual research conference on August 21, 2020.
The conference will focus on biomedical, public health, and behavioral aspects of ME/CFS and associated comorbidities.
CCDP Medical Director, Dr. Luis Nacul, will be presenting on "The impact of COVID-19 on the risk and prognosis of ME/CFS."
CCDP Internist, Dr. Jane McKay, will be speaking about "Low-dose naltrexone in ME/CFS and FM- the Vancouver experience."
Please click here to view the conference main page and registration information.
This $1.4M, five-year investment aims to improve the quality of life of people living with ME through:
- investigating the causes of ME, including possible links to viruses and genes;
- linking cohorts of patients and researchers in Canada and the US, enabling investigators to share research samples, clinical data, and analysis methods;
- supporting graduate students working on ME to build Canadian capacity to research this condition; and
- benefiting from the wisdom of people with ME who are active research partners.
Find out more about the role of the Complex Chronic Diseases Program in this research.
Read the full News Release from the Canadian Institutes of Health Research.
We are thrilled to welcome Dr. Luis Nacul as the new medical director and research director of the Complex Chronic Diseases Program (CCDP).
“We are very lucky to have Dr. Nacul join our team and lead CCDP,” says Dr. Stephanie Rhone, senior medical director, specialized programs, at BC Women’s. “Dr. Nacul will have dedicated research time in addition to his clinical and administration work, which is a huge asset to the program. His research expertise will inform the way we treat patients and open the door to new discoveries.”
Dr. Nacul is an internationally renowned leading clinician and researcher in his field with a broad understanding of complex chronic diseases treated at CCDP from medical, health services and research perspectives.
“It is a privilege for me to join such a dedicated team at one of a few centres in the world that specifically treats complex chronic diseases,” says Dr. Nacul. “I look forward to starting my new role and the opportunity to work in a collaborative environment that involves patient and community groups that are most affected.”
One of the challenges in treating complex chronic diseases is that their causes are unclear. In his capacity as CCDP research director, Dr. Nacul will leverage an established clinical program to expand research into complex chronic diseases. This is an important gain for the program, as CCDP patients with myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS), fibromyalgia syndrome and symptoms attributed to chronic Lyme-like disease will be able to benefit directly from research discoveries.
Dr. Nacul will also have an appointment as a researcher with the Women’s Health Research Institute. His research time is funded by the BC Centre for Disease Control (BCCDC) Foundation through its BCCDC Foundation Research Scholar Award.
The Complex Chronic Diseases Program is excited to announce that we are developing a new model of care to better support our clients. We are changing our current model to increase client accessibility through telehealth, build connections amongst clients, and reduce wait times between appointments. The new model of care will broaden our ability to support clients after they participate in our program and provide resources while they are on the waitlist.
Our new program will focus on offering group based education and self-management support, while continuing to offer 1:1 medical visits. This group education format is supported by client feedback and research. The new model of care will roll out in early 2019. As we develop this new model we will continue to see clients, and will communicate with our current clients about how this change may impact their journey with us. Please check back to the website for updates on our progress.
The Complex Chronic Disease Program team wins two significant awards!
May 12 is International Awareness Day for Chronic Immunological and Neurological Diseases. This day recognizes a host of diseases that include Fibromyalgia, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Multiple Chemical Sensitivity and Gulf War Syndrome. Click here
to find out more.
- In May 2017, The CCDP, in partnership with our Community Advisory Committee, held a World Cafe style engagement event. Read the CCDP World Cafe report from this event.
- We have received several questions around the role of Cognitive Behavioural Therapy (CBT) in the Program. Please click here to learn more about CBT in the program and the patient experience.
- We are excited to share that we are embarking on a project to make more information available to the community through the use of patient and public education videos.
- For an update on The Complex Chronic Diseases Study, led by Dr. Patrick, click here.
- To watch an interview Dr. Patrick gave on Lyme Disease, click here.