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Complex Chronic Diseases Program (CCDP)

We treat and manage Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia, and symptoms attributed to Chronic Lyme Disease.
About
At the Complex Chronic Diseases Program our goal for the program is to provide patient and symptom-centered care with the support of our interprofessional team of health care providers. 

We emphasize that treatment choice takes patient preferences into account, and that self-care is supported as well as treatment. Central to this is the development of partnership in care, and facilitation of patient involvement in assessment and in treatment decisions.

In the interest of ensuring the safety of our patients and staff, CCDP has postponed our in-person elective groups. We are currently connecting via zoom and phone. We will update the website when we resume in-person elective groups.

The Complex Chronic Diseases Program provides care for adults of all genders who are living with the following complex chronic diseases:

The Complex Chronic Diseases Program implemented a new model of care in early 2019 to better support our clients. Our program focuses on offering group-based education and self-management support, while continuing to offer 1:1 medical visits. This group education format is supported by client feedback and research. 


We have changed our model to increase client accessibility through telehealth and virtual health. Our model of care broadens our ability to support clients after they participate in our program and provide resources while they are on the waitlist.

The CCDP has an inter-professional team who bring different perspectives and expertise to your care and treatment plans.  All of the team members work together to collaborate with you around your care.


Our clerical team is responsible for scheduling your appointments. They will be your first point of contact with our clinic. 


Our medical team includes physicians, naturopath and pharmacist.


Our inter-professional team includes nurses, physiotherapist, occupational therapist, dietitian, social work and counseling. 


To participate in this program, you must have a completed referral form from your primary health care professional (such as a family doctor, nurse practitioner, naturopathic doctor) or specialist who will support your daily chronic disease management and follow your ongoing health. 

We will work directly with your primary health care professional to ensure that they receive information to provide you with the best available standards of care.


Referrals to the Complex Chronic Disease Program

New patients during COVID-19

In keeping with the BC provincial health officer's advice to meet the requirements of social distancing, all our in person appointments and elective groups will be offered via telephone or postponed.

For new patients that will be contacted during this time, you may receive a phone call from our booking team to schedule a telephone self-management assessment with a clinician followed by a telephone medical consult with a physician. Please complete lab work (if requested) prior to your telephone physician assessment.

The physician will determine your eligibility for the CCDP. If you are accepted into the program, our booking team will contact you by phone to schedule your case-coordination appointments and provide a follow up email with medical visit handouts and a link to our introduction videos. The case-coordination phone calls with our team will assist you in selecting the elective groups you would like to take at CCDP.

 

Cancelled/Rescheduled/Missed Appointments

We require at least two full business days’ notice to cancel or to reschedule an appointment. This allows us to accommodate other clients who are waiting.

Due to the very high need for our service, if you miss three
appointments you will be discharged from our program. If there are barriers to your participation in the program, please let us know as soon as possible. You can contact our us at: (604) 875-2061







What is a CCD?

Complex chronic diseases, such as Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Fibromyalgia (FM), and symptoms attributed to Chronic Lyme Disease, are long in duration and there is no specific treatment.  In many cases, the causes of these diseases are unknown.

CCDs are called complex because:

  • The factors involved in causing these conditions are not well understood.
  • The symptoms and effects of any CCD can vary greatly among people with the same condition.
  • The longer duration of a CCD can lead to other health complications. These can include physical problems such as weakness, fatigue, and difficulty with daily activities (functionality). 
  • Any long-term illness can impair relationships, education and career goals, and affect a person’s mental health.
With all of these conditions, there are no blood or other laboratory tests to confirm a diagnosis. They are diagnosed based on symptoms described by the patient and medical assessment.

Each person with a CCD will experience their disease in a unique way, with symptoms that may or may not exactly match the most common descriptions. The most helpful approach to treatment will identify patients’ needs according to their symptoms and day to day functionality.

Even if you have had a CCD for a long time, there are steps you can take to feel better and gradually improve your condition. Having your CCD diagnosed as early as possible will help with a better and more rapid recovery.


 

The Complex Chronic Diseases Program provides care for patients who are living with the following complex chronic diseases:

 
 


News & Events





June  

June 7, 2022

Alumni June 2022.jpgCCDP Alumni: Connect on Posture and Equipment
Who: CCDP Alumni (discharged from the CCDP)
What: Connect with Sandy (PT) and Jen (OT) on strategies related to Posture and Equipment
When: June 7, 2022 from 1:30 pm – 3:00 pm
Where: ZOOM! You will receive the meeting details after e-mail registration.
Why: To refresh your knowledge, foster connection and share your wisdom
 
In this session of the “Connect with a Provider” series, Sandy (PT) and Jen (OT) will be facilitating a session on Posture and Equipment

Note that this is not an educational group but rather an opportunity for participants to connect and learn from one another. As such, we will not be covering any new information or new content.
Please join us!

Please register for this event by email to infoCCDP@cw.bc.ca and indicate the date of the event.

June 14, 2022

KIT June 22.png

CCDP Alumni: Keep in Touch - Equipment & Identity

Who: CCDP Alumni (discharged from the CCDP)
What:  This session compliments the Connect with a Provider session on Posture and Equipment, though it is not a pre-requisite. 
When: June 14th, 2022 from 1:30-3pm
Where: ZOOM. You will receive the meeting details after e-mail registration.
Why: To share ideas, wisdom, and foster connection.

Living with chronic illness and adapting to new ways of doing things can be really hard. In this session we’ll make space to explore some of the challenges that can be associated with using personal equipment or community resources. 

Join us to discuss both individual and social barriers, but also to share what has been helpful in your experience in navigating these areas.

Note that this is not an educational group but rather an opportunity for participants to connect and learn from one another. As such, we will not be answering questions or covering any new information related to the topic.

Please register for this event by email to infoCCDP@cw.bc.ca and indicate the date of the event.


June 28, 2022

DABC June 28, 2022.png
Disability Tax Credit (DTC) and Registered Disability Savings Plan (RDSP) Webinar

Who: Webinar hosted by CCDP and Disability Alliance
What: Info Session that will cover eligibility criteria & application process for the DTC and RDSP
When: June 28th, 2022 from 1:30-3pm
Where: ZOOM. You will receive the meeting details after e-mail registration.

This is a CCDP community event and is open to anyone! There will also be time for question and answers.

May 3, 2022

Apr CWP image.jpg

‎CCDP Alumni: Connect on Pacing & Exercise

Who: CCDP Alumni (discharged from the CCDP)
What:  Connect woth Sandy (PT) and Jen (OT) on strategies related to Pacing and Exercise.  
When: May 3rd, 2022 from 1:30-3pm
Where: ZOOM. You will receive the meeting details after e-mail registration.
Why: To share ideas, wisdom, and foster connection.
 
The CCDP is seeking to provide a space to share information and foster connection. In this session of the “Connect with a Provider” Sandy (PT) and Jen (OT) will be facilitating a session on Pacing and Exercise.

Note that this is not an educational group but rather an opportunity for participants to connect and learn from one another. As such, we will not be covering any new information or new content related
Please join us!

Please register for this event by email to infoCCDP@cw.bc.ca and indicate the date of the event.

May 17, 2022

KIT Apr image.jpg

CCDP Alumni: Keep In Touch -Protecting Rest- Internal and Social Barriers to Pacing

Who: CCDP Alumni (discharged from the CCDP)
What:  This session compliments the Connect with a Provider session on Pacing & Exercise, though it is not a pre-requisite. In this discussion-based group we will explore challenges and strategies related to rest and pacing.  
When: May 17th, 2022 from 1:30-3pm
Where: ZOOM. You will receive the meeting details after e-mail registration.
Why: To share ideas, wisdom, and foster connection.
 
There are often internal barriers to pacing and rest that persist given cultural expectations, personality traits, upbringing, and vocational history. Implementing pacing and rest can be challenging for these reasons, and is often further complicated when navigating social situations and relationships where  others may not understand or see all the work of illness management these invisible illnesses require. Join us to share strategies around pacing and rest, navigating social relationships, asserting boundaries and more!
 
Note that this is not an educational group but rather an opportunity for participants to connect and learn from one another. As such, we will not be answering questions or covering any new information related to the topic.
 
Please register for this event by email to infoCCDP@cw.bc.ca and indicate the date of the event.



ME/CFS International Awareness Day 2022
May 12 is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) International Awareness Day. In recognition of this day ME Victoria Association organized the BC Legislative buildings in Victoria to be lit with the ME/CFS colour blue.

MECFS International Awareness Day.jpg


Alumni Events Feedback
The CCDP Alumni Events were launched two years ago and have adapted to meet both participants and program needs. We are welcoming participant feedback about the Connect with a Provider and Keep in Touch events. Please click the below link to share your experiences about accessing and attending these events. Your feedback will support the continued development and evolution of the CCDP Alumni Events.
With thanks,
CCDP Team

Survey: Keep in Touch


*The Friends and Family event is currently on hiatus. We are in the process of reviewing the format and hope to offer it again in the future. Once it is available we will update our website and also advise patients as part of our regular communications.

Previous CCDP updates

20Panel Title


November 23, 2021

Educational event on complex chronic diseases with UBC students and patients

On November 23, 2021, four patient representatives from the CCDP’s Community Advisory Committee participated in a workshop entitled, Unmet Health Care Needs: The Impacts of Poorly Understood Chronic Conditions in partnership with the Patient & Community Voices workshop series at UBC. The workshop was attended by 24 students from eight different disciplines including audiology, dietetics, nursing, occupational therapy, pharmacy, physical therapy, speech language pathology, and social work. Dr. Luis Nacul, Medical and Research Director of the CCDP also in attendance and addressed the students. This is the second time this workshop has been hosted; In both events, students provided strong, positive feedback.  



September 22, 2021

Medical Education Webinar: Myalgic Encephalomyelitis - Diagnosis, Management and Current Research (with Dr Teresa Clark and Dr Luis Nacul from CCDP)

On September 22, 2021, ME/FM Society of BC partnered with ICanCME's Working Group on Trainee Development and Medical Education to develop a webinar for the Federation of Medical Women in Canada (FMWC - FFMC). Topics covered included: diagnosis, management and current research.

Dr Teresa Clark (from CCDP and the FMWC) chaired the event, which included presentations from international experts, Dr. Nina Muirhead (ICanCME and Doctors with M.E) and Dr. Lucinda Bateman (Bateman Horne Center), BC’s CCDP Medical and Research Director, Dr. Luis Nacul (Women's Health Research Institute), and Patient Voice, Hilary Robertson (ME/FM Society of BC). 

Pre-recorded webinar runs for 1hr 12mins. 
https://www.youtube.com/watch?v=GJioH_w807E  

(adapted from https://www.mefm.bc.ca/post/international-me-webinar)


August 21, 2020

 

The International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (IACFS/ME) will be hosting their first virtual research conference on August 21, 2020.

The conference will focus on biomedical, public health, and behavioral aspects of ME/CFS and associated comorbidities.

CCDP Medical Director, Dr. Luis Nacul, will be presenting on "The impact of COVID-19 on the risk and prognosis of ME/CFS."

CCDP Internist, Dr. Jane McKay, will be speaking about "Low-dose naltrexone in ME/CFS and FM- the Vancouver experience."

Please click here to view the conference main page and registration information

August 19, 2020

CCDP is excited to announce that our Research and Medical Director, Dr. Luis Nacul, has two research projects that was recently awarded funding and support from the BC SUPPORT UNIT Fraser Centre.

The two projects aim to apply brain imaging and neurophysiological tools to help patients living with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome.

To learn more about these projects, please visit the ME/FM Society of BC website.

August 2019

Government of Canada invests $1.4M in biomedical research to improve the quality of life of people living with myalgic encephalomyelitis 

This $1.4M, five-year investment aims to improve the quality of life of people living with ME through:

  • investigating the causes of ME, including possible links to viruses and genes;
  • linking cohorts of patients and researchers in Canada and the US, enabling investigators to share research samples, clinical data, and analysis methods;
  • supporting graduate students working on ME to build Canadian capacity to research this condition; and
  • benefiting from the wisdom of people with ME who are active research partners.  

 

Find out more about the role of the Complex Chronic Diseases Program in this research.

Read the full News Release from the Canadian Institutes of Health Research.

April 2019

BC Women’s welcomes Dr. Luis Nacul as the new Medical Director for the CCDP

We are thrilled to welcome Dr. Luis Nacul as the new medical director and research director of the Complex Chronic Diseases Program (CCDP). 

“We are very lucky to have Dr. Nacul join our team and lead CCDP,” says Dr. Stephanie Rhone, senior medical director, specialized programs, at BC Women’s. “Dr. Nacul will have dedicated research time in addition to his clinical and administration work, which is a huge asset to the program. His research expertise will inform the way we treat patients and open the door to new discoveries.”

Dr. Nacul is an internationally renowned leading clinician and researcher in his field with a broad understanding of complex chronic diseases treated at CCDP from medical, health services and research perspectives.

“It is a privilege for me to join such a dedicated team at one of a few centres in the world that specifically treats complex chronic diseases,” says Dr. Nacul. “I look forward to starting my new role and the opportunity to work in a collaborative environment that involves patient and community groups that are most affected.”

One of the challenges in treating complex chronic diseases is that their causes are unclear. In his capacity as CCDP research director, Dr. Nacul will leverage an established clinical program to expand research into complex chronic diseases. This is an important gain for the program, as CCDP patients with myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS), fibromyalgia syndrome and symptoms attributed to chronic Lyme-like disease will be able to benefit directly from research discoveries.

Dr. Nacul will also have an appointment as a researcher with the Women’s Health Research Institute. His research time is funded by the BC Centre for Disease Control (BCCDC) Foundation through its BCCDC Foundation Research Scholar Award.

New Model of Care Development

November 2018

The Complex Chronic Diseases Program is excited to announce that we are developing a new model of care to better support our clients. We are changing our current model to increase client accessibility through telehealth, build connections amongst clients, and reduce wait times between appointments. The new model of care will broaden our ability to support clients after they participate in our program and provide resources while they are on the waitlist.

‎Our new program will focus on offering group based education and self-management support, while continuing to offer 1:1 medical visits. This group education format is supported by client feedback and research. The new model of care will roll out in early 2019. As we develop this new model we will continue to see clients, and will communicate with our current clients about how this change may impact their journey with us. Please check back to the website for updates on our progress.


Complex Chronic Disease Program Awards
The Complex Chronic Disease Program team wins two significant awards!

  • Award of Excellence for Interprofessional Collaboration: This award honours exemplary interprofessional collaborative practices, leadership and excellence from individuals and teams throughout BC Women's Hospital, BC Women's Hospital & Health Centre, and Sunny Hill Health Centre for Children. 

  • PHSA+ Awards: We share this award with BC Cancer and the Office of Virtual Health. This award celebrates the people and projects who exemplify PHSA's value of leadership in providing excellent care for vulnerable populations. 

International Awareness Day
May 12 is International Awareness Day for Chronic Immunological and Neurological Diseases. This day recognizes a host of diseases that include Fibromyalgia, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Multiple Chemical Sensitivity and Gulf War Syndrome. Click here to find out more.
  • In May 2017, The CCDP, in partnership with our Community Advisory Committee, held a World Cafe style engagement event. Read the CCDP World Cafe report from this event.
 
  • We have received several questions around the role of Cognitive Behavioural Therapy (CBT) in the Program.  Please click here to learn more about CBT in the program and the patient experience. 
 

    We are excited to share that we are embarking on a project to make more information available to the community through the use of patient and public education videos. 
  • For an update on The Complex Chronic Diseases Study, led by Dr. Patrick, click here.
  • To watch an interview Dr. Patrick gave on Lyme Disease, click here.

























 
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