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Complex Chronic Diseases Program (CCDP)

We treat and manage Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia, and symptoms attributed to Chronic Lyme Disease.
About

COVID-19 and Complex Chronic Diseases

In the interest of ensuring the safety of our patients and staff, CCDP has postponed our in-person elective groups.  If you have an upcoming in-person elective group scheduled, you will be contacted by our booking team with more information.

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The Complex Chronic Diseases Program provides care for patients who suffer from the following complex chronic diseases:

Our goal for the program is to provide patient and symptom-centered care with the support of our interprofessional team of health care providers. We emphasize that treatment choice takes patient preferences into account, and that self-care is supported as well as treatment. Central to this is the development of partnership in care, and facilitation of patient involvement in assessment and in treatment decisions. 

The CCDP team is an inter-professional team which means it is has members from different professional backgrounds who bring different perspectives and expertise to your care and treatment plans.  All of the team members work together to collaborate with you around your care and treatment plan.

How we partner with you

The Complex Chronic Diseases Program implemented a new model of care in early 2019 to better support our clients. Our new program focuses on offering group-based education and self-management support, while continuing to offer 1:1 medical visits. This group education format is supported by client feedback and research. 

We are changing our current model to increase client accessibility through telehealth, build connections amongst clients, and reduce wait times between appointments. The new model of care will broaden our ability to support clients after they participate in our program and provide resources while they are on the waitlist.

As we implement this new model of care, we will continue to see new clients.  Please check back to the website for updates on our progress.

Appointments
Appointments

You need a referral from a physician or nurse practitioner for this Clinic. We will contact you with an appointment time. 

New patients during COVID-19

In keeping with the BC provincial health officer's advice to meet the requirements of social distancing, all our in person appointments and elective groups will be offered via telephone or postponed.

For new patients that will be contacted during this time, you may receive a phone call from our booking team to schedule a telephone self-management assessment with a clinician followed by a telephone medical consult with a physician. Please complete lab work (if requested) prior to your telephone physician assessment.

The physician will determine your eligibility for the CCDP. If you are accepted into the program, our booking team will contact you by phone to schedule your case-coordination appointments and provide a follow up email with medical visit handouts and a link to our introduction videos. The case-coordination phone calls with our team will assist you in selecting the elective groups you would like to take at CCDP.

Referrals

To become a patient of the program, you must have a completed referral form from your primary health care professional (such as a family doctor, nurse practitioner, naturopathic doctor) or specialist who will support your daily chronic disease management and follow your ongoing health.

We will work directly with your primary health care professional to ensure that they receive information to provide you with the best available standards of care. If you do not have a regular health care professional, we can provide a list of General Practitioners and Nurse Practitioners who are accepting new patients.

Cancelled/Rescheduled/Missed Appointments

We understand that living with complex and chronic diseases means that sometimes appointments need to be changed or cancelled. 

During this time, there will be no consequences if you cancel your appointment within 2 business days. 

We encourage you to contact us as soon as you are able if you need to make any changes.

News & Events

May 19, 2020

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June 2, 2020

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June 16, 2020

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August 2019

Government of Canada invests $1.4M in biomedical research to improve the quality of life of people living with myalgic encephalomyelitis 

This $1.4M, five-year investment aims to improve the quality of life of people living with ME through:

  • investigating the causes of ME, including possible links to viruses and genes;
  • linking cohorts of patients and researchers in Canada and the US, enabling investigators to share research samples, clinical data, and analysis methods;
  • supporting graduate students working on ME to build Canadian capacity to research this condition; and
  • benefiting from the wisdom of people with ME who are active research partners.  

Find out more about the role of the Complex Chronic Diseases Program in this research.

Read the full News Release from the Canadian Institutes of Health Research.

April 2019

BC Women’s welcomes Dr. Luis Nacul as the new Medical Director for the CCDP

We are thrilled to welcome Dr. Luis Nacul as the new medical director and research director of the Complex Chronic Diseases Program (CCDP). 
“We are very lucky to have Dr. Nacul join our team and lead CCDP,” says Dr. Stephanie Rhone, senior medical director, specialized programs, at BC Women’s. “Dr. Nacul will have dedicated research time in addition to his clinical and administration work, which is a huge asset to the program. His research expertise will inform the way we treat patients and open the door to new discoveries.”

Dr. Nacul is an internationally renowned leading clinician and researcher in his field with a broad understanding of complex chronic diseases treated at CCDP from medical, health services and research perspectives.
“It is a privilege for me to join such a dedicated team at one of a few centres in the world that specifically treats complex chronic diseases,” says Dr. Nacul. “I look forward to starting my new role and the opportunity to work in a collaborative environment that involves patient and community groups that are most affected.”

One of the challenges in treating complex chronic diseases is that their causes are unclear. In his capacity as CCDP research director, Dr. Nacul will leverage an established clinical program to expand research into complex chronic diseases. This is an important gain for the program, as CCDP patients with myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS), fibromyalgia syndrome and symptoms attributed to chronic Lyme-like disease will be able to benefit directly from research discoveries.

Dr. Nacul will also have an appointment as a researcher with the Women’s Health Research Institute. His research time is funded by the BC Centre for Disease Control (BCCDC) Foundation through its BCCDC Foundation Research Scholar Award.

Previous CCDP updates

New Model of Care Development

November 2018

The Complex Chronic Diseases Program is excited to announce that we are developing a new model of care to better support our clients. We are changing our current model to increase client accessibility through telehealth, build connections amongst clients, and reduce wait times between appointments. The new model of care will broaden our ability to support clients after they participate in our program and provide resources while they are on the waitlist.

‎Our new program will focus on offering group based education and self-management support, while continuing to offer 1:1 medical visits. This group education format is supported by client feedback and research. The new model of care will roll out in early 2019. As we develop this new model we will continue to see clients, and will communicate with our current clients about how this change may impact their journey with us. Please check back to the website for updates on our progress.


Complex Chronic Disease Program Awards
The Complex Chronic Disease Program team wins two significant awards!

  • Award of Excellence for Interprofessional Collaboration: This award honours exemplary interprofessional collaborative practices, leadership and excellence from individuals and teams throughout BC Women's Hospital, BC Women's Hospital & Health Centre, and Sunny Hill Health Centre for Children. 

  • PHSA+ Awards: We share this award with BC Cancer and the Office of Virtual Health. This award celebrates the people and projects who exemplify PHSA's value of leadership in providing excellent care for vulnerable populations. 

International Awareness Day
May 12 is International Awareness Day for Chronic Immunological and Neurological Diseases. This day recognizes a host of diseases that include Fibromyalgia, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Multiple Chemical Sensitivity and Gulf War Syndrome. Click here to find out more.
  • In May 2017, The CCDP, in partnership with our Community Advisory Committee, held a World Cafe style engagement event. Read the CCDP World Cafe report from this event.
 
  • We have received several questions around the role of Cognitive Behavioural Therapy (CBT) in the Program.  Please click here to learn more about CBT in the program and the patient experience. 
 


  • We are excited to share that we are embarking on a project to make more information available to the community through the use of patient and public education videos. 
  • For an update on The Complex Chronic Diseases Study, led by Dr. Patrick, click here.
  • To watch an interview Dr. Patrick gave on Lyme Disease, click here.

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