The data registry collects longitudinal data reflecting patient history, pain, psycho-social factors, quality of life, physical exam pain mapping, specialized ultrasound results, surgical findings and pathology. This includes the completion of validated questionnaires yearly for up to 5 years to assess depression (PHQ-9), generalized anxiety (GAD-7), pain catastrophizing (PCS), sleep scale, and endometriosis health profile (EHP-30).
With a goal of better understanding endometriosis we are particularly interested in;
- predictors of chronic pelvic pain;
- sexual pain;
- sexual quality of life;
- central sensitization;
- characterizing endometriosis
- linking gene mutations to clinical symptoms and;
- exploring transnational and behavioral implications of our research findings.