Primary Care Toolkit

Toolkit:  Office tools for management of ME/CFS and FM patients     

Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)

• Recommended Initial Patient Work-up
• Diagnostic Criteria for ME/CFS
• Treatment Protocol for ME/CFS  
• Medication and Treatment Handouts
• This Change My Practice: CFS Upgraded to a Disease: UBC Physician Education
• Beyond ME/CFS: Redefining an Illness:  Institute of Medicine (IOM) Report on Systemic Exertion Intolerance Disease (SEID)      
• ME/CFS: Blame it on Mitochondria not Hypochondria: 6 minute video
• Central Sensitivity Syndromes:  Dr. Arseneau's St. Paul's Hospital Grand Rounds presentation Sept 2015
• CFS & Exercise:  Slides
• Patient Resources

Fibromyalgia (FM)

• Recommended Initial Patient Work-up
• Diagnostic Criteria for FM
• Treatment Protocol for FM (and related chronic pain disorders)
• Medication and Treatment Handouts
• Review Article
• Centrally (Brain) Mediated Pain & Fibromyalgia: 4 min video
• Central Sensitivity Syndromes:  Dr. Arseneau's St. Paul's Hospital Grand Rounds presentation Sept 2015
• Patient Resources

Symptoms Attributed to "Chronic Lyme Disease" (CLD)

• Recommended Initial Patient Work-up
• Lyme Testing Fact Sheet
• Treatment Protocol for CLD
• Medication and Treatment Handouts
• This Changed My Practice: Symptoms Attributed to CLD: UBC Physician Education
• Lyme Disease – Controversies and Misconceptions: Dr. Arseneau's St. Paul's Hospital Grand Rounds presentation April 2016
• Patient Resources

Journal Articles:

• Chronic Lyme Disease
• Chronic Lyme Disease: Misconceptions and challenges for patient management
• Laboratory Diagnosis of Lyme Disease: Advances and Challenges
• Post-Treatment Lyme Syndrome and Central Sensitization
• Lyme Disease Diagnosed by Alternative Methods: A Phenotype Similar to That of Chronic Fatigue Syndrome: Research paper by the CCDP
• Randomized Controlled Trial of Antibiotics for Symptoms Attributed to Lyme Disease
• Editorial on the Use of Antibiotics for Symptoms Attributed to Lyme Disease
• Patient Resources

Central Sensitivity Syndromes

• One Sheet Summary:  Explained in laymen's terms       
• Review Article
• This Change My Practice: UBC Physician Education
• Central Sensitivity Syndromes:  Dr. Arseneau's St. Paul's Hospital Grand Rounds presentation Sept 2015
• Patient Resources

Sleep

• Sleep Protocol
• Medication and Treatment Handouts
• Sleep Hygiene Instructions
• Patient Resources

Opioid Taper and Discontinuation

• Opioid Taper and Discontinuation Protocol
• This Changed My Practice: UBC Physician Education     
• Brainman Stops His Opioids: 2-minute video
• Printable Patient Information Handout
• Patient Resources

Multiple Chemical Sensitivities (MCS)

• Diagnostic Criteria
• Review Article
• Patient Resources
  

Irritable Bowel Syndrome (IBS)

• Treatment Protocol for IBS
• Medication and Treatment Handouts
• Review Article
• Cochrane Review
• Patient Resources

Interstitial Cystitis (IC)

• Treatment Protocol for IC
• Medication and Treatment Handouts
• When to suspect interstitial cystitis
• Review Article
• Guideline
• Patient Resources
  

Migraines

• Treatment Protocol for Migraines
• Medication and Treatment Handouts
• Review Article 
• Pharmacologic prevention of migraine
• Patient Resources

Postural Orthostatic Tachycardia Syndrome (POTS)

• Treatment Protocol for POTS
• Medication and Treatment Handouts
• Review Article
• Salt for POTS:  Patient treatment handout
• Patient Resources

Medical Resources

• Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
• Fibromyalgia
• Symptoms Attributed to Chronic Lyme Disease
• Multiple Chemical Sensitivities
• Central Sensitivity Syndromes
• Interstitial Cystitis
• Irritable Bowel Syndrome
• Migraines
• Postural Orthostatic Tachycardia Syndrome
• Sleep
• Opioid Taper
• Medication and Treatment Handouts

Community Support Services

Community Support Services for people living with a complex chronic disease