The Complex Chronic Diseases Program (CCDP) is a leader in providing inter-professional care to patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Fibromyalgia, and Symptoms of Chronic Lyme Disease.
Our current research project is the CCDP Data Registry. A data registry is a repository (bank) of information that is intended to be accessed to use in future research over an extended period of time. The Data Registry team is currently enrolling patients who are new to the CCDP.
In order to generate a better understanding of these debilitating conditions the data registry aims to:
a) Better characterize the patient population of the CCDP and
b) Assess CCDP patients' outcomes over time
Participation is voluntary and greatly appreciated.
Principal Investigator: Dr. Luis Nacul